HSB - Our Stories

"Unstoppable: A Journey of Triumph and Transformation"

– EX-Vice President,HSB

PARIMAL CHANDRA DEBNATH

I am a severe hemophiliac with factor-VIII deficiency. I am from a remote island district of Bangladesh. I passed my early life without any treatment but to use ice available in fishing village near our village home. Yes I had a very critical life during my school life still I was able to complete my school education with good grades and able to get admission into Dhaka University, which actually changed my life’s goals. Then I got to be able to get in touch with WFH and Mr. Ashok Verma, the founder of HFI. He guided me to establish Hemophilia Society of Bangladesh. And I have been working with HSB for last 28 years. It’s my pleasure to be a part of great transformation of HSB to new dimensions and the changing approach of government towards hemophiliacs is a great achievement of my life. We are now getting some factor support from government. I am an avid solo traveler and enjoy my vacation days around the country, sometimes outside country. My physical disability cannot stop me to go around and enjoy my life. Yes I am fond of adventure traveling, whatever my body permits. I love my life, I love hemophilia, it infact strengthen my life.

"Their awareness programs helped my family understand hemophilia better, reducing our fears."

– Member,NYC

FAHIM AL HABIB

When my son was diagnosed with hemophilia, our family was overwhelmed with fear and uncertainty. HSB’s awareness programs educated us about the condition, its management, and available treatments. Their workshops taught us how to support our son, and the community they built gave us hope and strength to face the future.

"Volunteering with HSB has shown me the power of community in supporting those with bleeding disorders."

– President,NYC

EFAD SAFI ISLAM

Joining HSB as a volunteer opened my eyes to the challenges faced by those with bleeding disorders. Organizing community events and support groups has been rewarding, as I’ve seen firsthand how HSB’s efforts bring people together, fostering a sense of belonging and resilience. I’m proud to contribute to their mission.

"HSB’s support groups gave me a sense of belonging and hope."

– General Secratary,NYC

DIPTO CHACCROBOTI

Growing up with hemophilia in Rajshahi, I often felt isolated. HSB’s support groups connected me with others who understood my struggles. Sharing experiences and learning from others gave me hope and practical tips for managing my condition. HSB’s community has been a lifeline, helping me thrive despite the challenges.